Moments From TOWDAH "A Time Of Thanksgiving/Charity Ball For The Sickle Smart" Which Was Organized By Balm in Gilead Foundation In Port Harcourt On The 15th Of July, 2018
The event kicked off with an opening prayer followed by a praise and worship session.
Vivian Williams Enebuse the convener made the opening remark, and appreciated everyone that came for the event, and explained how she is a victor of sickle cell anemia, and also talked about stigmatization.
Vivian talked about how God gave her a vision on the 8th of January, 2008, that she should give people living with sickle cell, hope. Ten years later 2018, it is a reality. She also talked about how God sustained her.
Vivian explained that Balm in Gilead Foundation is a Christian foundation to provide drugs for the sickle smart. She emphasized that if people in Port Harcourt speak up about sickle smart and checking their genotype, it will be better for the well being of individuals.
The 15th of July happened to be her birthday, and she used that opportunity to thank everyone for attending her birthday.
Minister Osaki ministered in a powerful praise and worship session after the opening remark by Vivian.
Dr. (Mrs) Dada Korubo who is a Hematologist that treats people living with sickle cell, was welcomed to give a talk, and she started with a song before her presentation. She revealed that Nigeria has the highest population of people living with sickle cell worldwide. She emphasized that those living with sickle cell should not be treated differently. She stated that sickle cell is an inherited disease, and advised that people check their genotype, thereafter she asked if everyone in the event knew their genotype.
Dr. Korubo stated that when people know their genotype, they will be able to make informed choices before they get married. Dr. Korubo advised that when you come in contact with prospective suitors, greet and state your genotype which will reduce sickle cell in the society. Dr. Korubo gave an illustration and said if at the point of getting married the couple are both AS, it will be too late to stop the wedding. Dr. Korubo went further to say that health practitioners can only advise people to know their genotype in order to make informed decisions. She also suggested that popular personalities should come out to sensitize people about sickle cell, along with enlightening the people that reside in rural areas.
Dr. Korubo talked about how sickle cell can be cured via bone marrow transfusion for people below the age of 12, which includes cells infusion. It costs between 10 - 15 million naira (Nigerian Naira). The transplant however does not have 100% success, but it is still better.
If you are sickle cell, you have to know your steady state hemoglobin.
Sickle smart individuals were presented with gifts.
Also save this date, "World Sickle Day" is June 19th every year.
It is important to note that in Nigeria about 30% of her population's genotype is AS. If your genotype is AS, the best person to get married to is AA. Knowledge is power.
Then there was a charge by Dr. Kasarachi Innocent, who encouraged everyone at the event to always believe in their-self. Dr. Kasarachi charged the participants on learning how to lock their ears, because people will always have negative comments about them. He encouraged parents to love their children everyday and that their children are not useless, emphasizing that they must believe in God, trust God and be strong.
Dr. Kasarachi also stated that every negative word said to anyone should not be an hindrance, rather it should be a motivation. Let the words of men be a motivation.
Then Vivian Enebuse the convener gave the vote of thanks and thanked everyone for coming, and she stated that some people came for the event from far away Choba and even Ogoni.
Barr. Kemi Ogunnoiki, who was Vivian's teacher when she was in Teens Church at Living Faith Church, D/line, Port Harcourt, was recognized at the event, then she was called upon to take the closing prayer.
WHAT IS SICKLE CELL?
Sickle cell anemia is a profound blood disorder that affects many families. Sometimes, it can be life-threatening as it affects the way the blood carries oxygen around the body. For people with sickle cell diseases, red blood cells can sometimes get stiff and clogged up in the blood vessels due to their irregular the cresent moon like shape. This causes severe pain and sometimes needing treatment alongside medication to help them cope with the pain. This pain episode is known as a crises.
Vivian Williams Enebuse the convener made the opening remark, and appreciated everyone that came for the event, and explained how she is a victor of sickle cell anemia, and also talked about stigmatization.
Vivian talked about how God gave her a vision on the 8th of January, 2008, that she should give people living with sickle cell, hope. Ten years later 2018, it is a reality. She also talked about how God sustained her.
Vivian explained that Balm in Gilead Foundation is a Christian foundation to provide drugs for the sickle smart. She emphasized that if people in Port Harcourt speak up about sickle smart and checking their genotype, it will be better for the well being of individuals.
The 15th of July happened to be her birthday, and she used that opportunity to thank everyone for attending her birthday.
Minister Osaki ministered in a powerful praise and worship session after the opening remark by Vivian.
Dr. (Mrs) Dada Korubo who is a Hematologist that treats people living with sickle cell, was welcomed to give a talk, and she started with a song before her presentation. She revealed that Nigeria has the highest population of people living with sickle cell worldwide. She emphasized that those living with sickle cell should not be treated differently. She stated that sickle cell is an inherited disease, and advised that people check their genotype, thereafter she asked if everyone in the event knew their genotype.
Dr. Korubo stated that when people know their genotype, they will be able to make informed choices before they get married. Dr. Korubo advised that when you come in contact with prospective suitors, greet and state your genotype which will reduce sickle cell in the society. Dr. Korubo gave an illustration and said if at the point of getting married the couple are both AS, it will be too late to stop the wedding. Dr. Korubo went further to say that health practitioners can only advise people to know their genotype in order to make informed decisions. She also suggested that popular personalities should come out to sensitize people about sickle cell, along with enlightening the people that reside in rural areas.
Dr. Korubo talked about how sickle cell can be cured via bone marrow transfusion for people below the age of 12, which includes cells infusion. It costs between 10 - 15 million naira (Nigerian Naira). The transplant however does not have 100% success, but it is still better.
If you are sickle cell, you have to know your steady state hemoglobin.
Sickle smart individuals were presented with gifts.
Also save this date, "World Sickle Day" is June 19th every year.
It is important to note that in Nigeria about 30% of her population's genotype is AS. If your genotype is AS, the best person to get married to is AA. Knowledge is power.
Then there was a charge by Dr. Kasarachi Innocent, who encouraged everyone at the event to always believe in their-self. Dr. Kasarachi charged the participants on learning how to lock their ears, because people will always have negative comments about them. He encouraged parents to love their children everyday and that their children are not useless, emphasizing that they must believe in God, trust God and be strong.
Dr. Kasarachi also stated that every negative word said to anyone should not be an hindrance, rather it should be a motivation. Let the words of men be a motivation.
Then Vivian Enebuse the convener gave the vote of thanks and thanked everyone for coming, and she stated that some people came for the event from far away Choba and even Ogoni.
Barr. Kemi Ogunnoiki, who was Vivian's teacher when she was in Teens Church at Living Faith Church, D/line, Port Harcourt, was recognized at the event, then she was called upon to take the closing prayer.
WHAT IS SICKLE CELL?
Sickle cell anemia is a profound blood disorder that affects many families. Sometimes, it can be life-threatening as it affects the way the blood carries oxygen around the body. For people with sickle cell diseases, red blood cells can sometimes get stiff and clogged up in the blood vessels due to their irregular the cresent moon like shape. This causes severe pain and sometimes needing treatment alongside medication to help them cope with the pain. This pain episode is known as a crises.
Noble project. May God make sufficient provision that will sustain the vision in Jesus name. Good job Vivian Enebeli.
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